Other Resources
The 22q and You Center at Children's Hospital of Phildelphia
215-590-2920
The International 22q11.2 Deletion Syndrome Foundation, Inc.
www.22q.org
Cleft-Craniofacial Center at Children's Hospital in Pittsburgh
412-692-8650
Velo-Cardio-Facial Syndrome Educationla Foundation, Inc.
www.vcfsef.org
Parent to Parent Network of Pennsylvania
1-800-986-4550
www.parenttoparent.org
Missing Genetic Pieces (by Sherry Baker-Gomez)
Missing Genetic Pieces is "a comprehensive handbook for parents, professionals,
and anyone wanting to know about chromosome 22 deletion (22q11) and its dynamics"
(VCFS).
Visit Sherry's website at
www.winmarkcom.com/vcfs.htm.
Educating Children with Velo-Cardio-Facial Syndrome (by Donna Cutler-Landsman)
"[Educating Children with Velo-Cardio-Facial Syndrome] contains chapters written by leading
world experts on VCFS in the areas of language and learning issues, brain abnormalities,
language/learning profiles, psychiatric/behavioral difficulties, health issues and a history of
the syndrome. The second section of the book is a practical guide to educating a child with VCFS
from birth to young adulthood."
(Cutler-Landsman).
Visit Donna's website at
www.cutler-landsman.com/.